This World Thalassemia Day, a Vadodara-based NGO called The Wishing Factory launched a massive campaign with the support of eminent individuals from the country. They urged everyone to put up a picture of half their face on social media and tag #AadhiwaliZindagiMitao.
This half face was a reminder of this deadly disease that stole lives half way and urged people to get tested. The celebrities posted a common message tagging and urging others to do the same.
Speaking about the initiative, Sonakhi said:
Kunal Kapoor made some stark observations about the issue in India:
Others like Abhishek Bachchan, Anil Kapoor, Farah Khan, Rajkumar Rao, Arjun Kapoor, Huma Qureshi also came forth to show support.
The Wishing Factory is a non-profit working for Thalassemia Major patients in various parts of India, providing these patients with improved healthcare and livelihood support. The organisation was started in 2015 by Partth Thakur, who suffers from Thalassemia Major himself.
In the words of Partth:
But once Partth realised that with the progress of the medication, his life could be extended as far as 30 years or even more, he decided he wanted to help spread awareness about thalassemia and also support the healthcare and education of over 2000+ patients across different cities of the country.
Partth feels that while a lot has been written about the disorder but the awareness levels are still low and people don’t treat it as seriously. And while testing and vaccination for other prominent illnesses have been pressed upon, thalassemia still remains under the wraps.
(At The Quint, we are answerable only to our audience. Play an active role in shaping our journalism by becoming a member. Because the truth is worth it.)