I have had the “I want to die” conversation with my father a number of times. A conversation he initiates. A conversation in which he tells me that he just wants to end the degeneration that Parkinson’s disease, dementia and diplopia have launched on him.
Where he laments the loss of independence and mobility. On his quality of life. On the impact it has on me as his primary caregiver.
I don’t know what brings this on, but, I have often been confronted by “Sangeeta, I want to die” or “Sangeeta, why am I still living” – or some such refrain.
Addressing the Cause of Anna’s Suicidal Thoughts
The first few times I heard this, I deflected. It is easier to change the topic than to have a conversation on death. I deflect with “Anna, you are doing fine” or some such rhetorical comment.
From deflection, I moved to trying to find out what brought this on. I can well understand that a person with my father’s diseases and limitations gets depressed and that depression leads to thoughts of dying. Of ending it all. So I run through my mind all the reasons that could have brought on the depression – the medication, or a physical illness, or not speaking with relatives for a long time, or being cooped up at home, or boredom.
And then I address what I feel is the key driver of the depression in the best way possible.
From deflection to “what brought this on?”, I move to asking Anna, “Why do you want to die?” or “Why are you thinking of death?”
When his response to this question is specific, it is easy to address. But when it is not, I have to use logic and a process of elimination to determine the cause, and then address that cause.
Bringing my Dad Back From the Precipice
I then change the topic to walking, or food, or physio, or politics, or something that is safe ground. And coax him to do some activity. And I chatter away like a child about anything but death.
As I leave his house, I feel washed out! The clothes I am wearing have faded. The street and sounds and lights have receded into the background.
I have been through an emotional wringer and come out the other end still standing on my feet.
This time.
(After working in corporate India for over 29 years, Sangeeta has taken time off to look after her father, who was diagnosed with Parkinson’s Disease in 2008. Sangeeta hopes that these authentic stories will help patients and caregivers understand and appreciate the impact of Parkinson’s Disease. You can follow Sangeeta’s blog here.)
Related Links in the Series
How my Father, the Parkinson’s Patient, Aced the Spoken Word
From a Real Life Piku: Looking After an Elderly ‘Child’
Dealing with Dependence: A Daughter’s Tale of her Father
My Anna Holds on to his Bata Sandals, Even as He Loses his Memory
Who Knew That Nutella Would Convince My Old Dad to Take his Pills?
For a Dad with Parkinson’s, I’d Get Him All the Junk Food He Wants
That Time When Dad Hallucinated About My Sister in the Hospital
How the T20 World Cup Took My Ailing Anna to an Older Cricket Era
(At The Quint, we are answerable only to our audience. Play an active role in shaping our journalism by becoming a member. Because the truth is worth it.)